SWISS PKU – Swiss Association for Phenylketonuria and Other inborn errors of protein metabolism

Dorfstrasse 40
9108 Gonten, Switzerland

Phone: +41 71 794 11 97


Copyright information
This website is intended for private, personal and commercial use. From this website you can download only materials explicitly offered for this purpose (text, image and audio files) and use them for your personal, non-commercial/commercial use. No other materials may be copied, edited, sold or otherwise used without prior, explicit, written consent of the website operator.
With the available downloads, you will receive licence rights (rights of use) and in the relevant general terms and conditions of business on the corresponding websites, defined legal titles and claims to the downloaded material.

This website may contain links to other websites. The operator of this website is not responsible for the availability of these sites or for the content or materials contained in these websites or linked to them. By linking to another website or referring to information, products or services of third parties, the operator does not support these websites or materials. Any questions or comments with regard to other websites must be addressed to the operators of the relevant sites.

The user is not entitled to assert any claims arising from temporary technical failures of the server, interruptions or other disruptions in the functioning of the website or the offers or arising from announced updates and required maintenance.

The material on this website may contain inaccuracies or typographical errors. The operator is neither responsible nor liable for losses or damage caused by or arising from the user relying on information obtained from or via this website. It is the responsibility of the user to assess the information and other content made available via this website. This website and the information and materials contained therein can be changed at any time, at certain intervals and without prior or later notice. The current general terms and conditions of business are governed by Swiss law.

Data protection and privacy declaration for the use of Facebook plug-ins (‘Like’ button)
Plug-ins of the social network Facebook, 1601 South California Avenue, Palo Alto, CA 94304, USA are integrated on the website. The Facebook plug-ins display the Facebook logo or the ‘Like’ button on the website. You’ll find an overview of the Facebook plug-ins here: When you visit these pages, a direct connection between your browser and the Facebook server will be established. Facebook will receive the information that you have visited this site with your IP address. When you click the Facebook ‘Like’ button while you are logged into your Facebook account, you can link the contents of the pages to your Facebook profile. This enables Facebook to assign the visit of my website to your user account. The operator wishes to point out that as the provider of the page, the operator is not provided with any information about the content of the transmitted data or its use by Facebook. You’ll find further information in this regard in the data protection and privacy declaration of Facebook at If you do not want Facebook to be able to assign the visit of these pages to your Facebook user account, please log out of your Facebook user account.

Data protection and privacy declaration for the use of Google +1
Collection and forwarding of information: With the aid of the Google +1 button, you can publish information worldwide. Via the Google +1 button you and other users receive personalised content from Google and our partners. Google stores the information you provided for a content +1 as well as information on the page you were viewing when you clicked +1. Your +1 together with your profile name and your photo can be displayed in Google services such as search results or in your Google profile or in other locations on websites and advertisements on the internet.

Google records information about your +1 activities to improve the Google services for you and others. In order to use the Google +1 button, you need a public Google profile that is visible worldwide that must include at least the name selected for the profile. This name will be used in all Google services. In some cases this name can be substituted for another name you have used to share content via your Google account. The identity of your Google profile can be displayed to users who know your e-mail address or have other identifying information about you. Use of the collected information: In addition to the purposes described above, the information you provided will be used in accordance with the Google data protection and privacy provisions. Google may publish summarised statistics about the +1 activities of the users and forward these to users and partners such as publishers, advertisers or affiliated websites.

Data protection and privacy declaration of Twitter
Functions of the Twitter service are integrated on these pages. These functions are offered by Twitter Inc., 795 Folsom St., Suite 600, San Francisco, CA 94107, USA. Via the use of Twitter and the ‘Re-Tweet’ function, the websites you visited are linked with your Twitter account and shared with other users. During this process, data is also transmitted to Twitter. The operator wishes to point out that as the provider of the page, the operator is not provided with any information about the content of the transmitted data or its use by Twitter. You’ll find further information in this regard in the data protection and privacy declaration of Twitter at You can change your data protection and privacy settings on Twitter in the account settings at Source: Disclaimer from eRecht24, the Internet law portal of Attorney Sören Siebert, Facebook disclaimer from eRecht24, Google +1 Terms, Twitter data protection and privacy declaration

This website uses Google Analytics, a web analysis service of Google Inc. (‘Google’). Google Analytics uses so-called ‘cookies’, which are text files stored on your computer that facilitate an analysis of your use of the website. The information about your use of this website (including your IP address) generated by the cookie is transmitted to a Google server in the United States and stored there. In the event that IP anonymisation is activated on this website, your IP address will be shortened by Google within member countries of the European Union or in other countries which are contracting parties to the Agreement on the European Economic Area. Only in exceptional cases will the full IP address be transmitted to a Google server in the United States and shortened there. On behalf of the operator of this website, Google will use this information to analyse your use of the website, to prepare reports on the website activities and to provide additional services associated with the use of the website and the internet use of associated services to the website operator. The IP address of your browser transmitted by Google Analytics will not be merged with other data by Google. You can prevent the storage of the cookies with the corresponding setting in your browser software; however, we herewith inform you that you may not be able to use the full functionality of the website if you do so. You can also prevent the collection and transmission of the data generated by the cookie and data related to your use of the website (including your IP address) to Google as well as the processing thereof by Google by downloading and installing the browser plug-in available under the following link:


Data protection and privacy declaration
Data protection and privacy are important to SWISS PKU. All of your data collected, processed and used during your visit to the SWISS PKU website is subject to strict legal requirements concerning the protection of personal data. By accessing the SWISS PKU website, you declare your consent to the present data protection and privacy declaration. Should you not agree with this data protection and privacy declaration, you must refrain from accessing this website in the future. This data protection and privacy declaration can be updated at any time without notice.

Purpose of the data protection and privacy declaration
SWISS PKU and its subsidiaries or branch offices undertake to protect the personal data of the website visitors.

Disclaimers and other contractual provisions you have agreed directly with SWISS PKU such as data protection and privacy declarations upon licence purchase take precedence over the provisions of this declaration.

Type, purpose and processing of collected information
When you visit the SWISS PKU website, our web server automatically registers your IP address, the type of browser, the pages of the SWISS PKU website you are currently visiting, including the date and duration of the visit and other personal data you provide us with via the contact form (such as your name, address, e-mail address and phone number). SWISS PKU uses this personal data exclusively for its own technical management and further development of the website as well as for user administration and marketing. The use of your personal data ensues exclusively in accordance with the applicable laws and regulations. Your data can be collected and processed with the use of tracking technologies such as cookies and tags. However, your computer must grant the corresponding permission by accepting cookies and other tracking technologies, for example. Depending on your browser settings, you will be warned of each tracking technology and can manage, permit or refuse such functions. Blocking or deactivating certain cookies can lead to restricted availability of the SWISS PKU website. E-mails sent to or from SWISS PKU will be stored by our e-mail system. Access to them by third parties can be granted only in legally justified cases (e.g. court orders, suspicion of a crime) and only to certain persons and/or institutions. E-mails are always deleted at the end of the retention period. You can request information from SWISS PKU about your personal data at any time, subject to providing proof of your identity.

SWISS PKU, Ringstrasse 70, 8057 Zurich, Switzerland

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